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Helpful Contact Information for Referral, Reference, etc.
Listed below are telephone numbers and web sites that may provide useful information for Hunterdon County's 0-21 year old special needs community.
This resource list is provided by Hunterdon County Special Child Health Services. For further information please contact Susan Freedman at 908-788-6399 or contact her online.
This list is provided for informational and educational purposes only and is not intended as medical advice nor is it intended to create any physician-patient relationship. This information should not substitute for a visit or a consultation with a health care provider. These links are provided as a service. Hunterdon Healthcare System does not endorse any organization, program or service listed here, or their philosophies. Responsibility for the content of these sites rests solely with those organizations.
Hunterdon County and Area Resources
Child Development Center at Hunterdon Medical Center www.hunterdonhealthcare.org
2100 Wescott Drive, Flemington, NJ 08822
Child Development Center Main Number 908-788-6396
Pediatric Rehabilitation 908-788-6396
Occupational & Physical Therapy
Psychological Counseling & Evaluation
Early Intervention (0-3 years) Service Coordination 908-788-6398
Special Child Health Services Case Management Unit 908-788-6399
Developmental Pediatric Associates 908-788-6650
Speech and Hearing Department 908-788-6424
Hunterdon County Department of Human Services Office on Disability
908-788-1361 908-788-1372 (VOICE/TDD)
Information: available for disability specific local, state and national resources.
Referral: made, as necessary to appropriate agencies for disability specific services.
Systems Case Management: follow-up on referrals to assure delivery of available appropriate services for clients' specific needs.
Advocacy: identifying specific agencies and/or personnel to guide clients in self-advocacy efforts.
Community Awareness: addressing issues which affect people with disabilities such as handicapped parking, architectural and attitudinal barriers, and the Americans with Disabilities Act.
The Arc of Hunterdon County 908-730-7827
www.archunterdon.org Family Support, Respite, Advocacy, Distinctive Family Solutions free in-home behavior program.
Progressive Center for Independent Living
908-782-1055, Toll free: 1-877-376-9174
TTY: 908-782-1081 www.pcil.org
The Progressive Center for Independent Living, Inc. (PCIL) advocates for the rights of people with disabilities to achieve and maintain independent lifestyles. Through promotion of choice, self-direction and inclusion, PCIL works with people with disabilities and their families to ensure the same freedoms and civil liberties as everyone else. Transition to adult life specialist on staff.
Housing Accessibility and Rehabilitation Program
The mission of the Housing Accessibility and Rehabilitation program is to promote safety and independence by providing housing modifications, repairs, and safety mechanisms to income-qualified senior citizens and individuals with disabilities who reside in Hunterdon County. HAR will also provide consultation and technical assistance in the arena of housing accessibility to all residents of Hunterdon County.
Hunterdon Helpline: 1-800-272-4630 or 908-735-4357 (help)
24 hour information on a wide range of local, state, and national services.
NORWESCAP offers many programs that assist individuals and families in a variety of ways, below is a sampling of programs offered. Main number 908-454-7000, Hunterdon County number 908-782-8183
Early Head Start, Family Loan Program, First Call For Help, Child & Family Resources, Food Bank, WIC
The National Center on Physical Activity and Disability www.ncpad.org
NCPAD is an information center concerned with physical activity and disability. Being physically active is good for every body. 1-800-900-8086 e-mail:email@example.com
The Hunterdon Outreach Program
Started in Hunterdon County in the spring of 2003, serves to promote and develop different sports for children in our Community who are physically or developmentally disabled. Currently, our programs include Soccer, Basketball, Baseball and Tennis. Our program is designed to grow and adapt to the needs of the children and to promote the growth of the program in the Community-at-large. Our program introduces these children to the sports who are not normally recruited due to their disabilities. All the programs that we conduct are free to the participating athletes. Each program brings the volunteers, athletes, and their parents together in a fun and caring environment. Dan Hendi 908-782-4875 (h) 908-797-3638 or Dave Irwin 908-788-8822
Somerset Hills YMCA
Somerset Hills YMCA has a variety of programs for kids with special needs www.somersethillsymca.org
Saturdays in Motion is a program designed for families with children who have autism;
S.N.A.P. Special Needs Adult Program: a social group designed to bring together young adults with special needs, aged 15 and over; Special Olympics offers training for young people interested in competitive swimming; S.T.A.R.S. is a swim program for children with special needs; Creative Movement is a dance class for special needs children ages 6-10.
VSA Arts of New Jersey www.vsanj.org
732-745-3885 VSA arts of New Jersey (VSA/NJ) is a part of the international VSA arts network, an affiliate of the John F. Kennedy Center for the Performing arts. VSA/NJ is dedicated to promoting the creative power of people with disabilities.
NJ Special Olympics www.sonj.org 609-896-8000
Local Contact: Joyce Kirchin firstname.lastname@example.org
Range of programs: Young Athlete Program Ages 2 ½ to 7 and Other programs include: Alpine Skiing, Aquatics, Aquatics, Basketball, Soccer, Bowling, Cross-Country Skiing, Cycling, Equestrian, Golf, Ice Skating, Soccer, Tennis, Track & Field
Riding With Heart www.RidingWithHeart.org
639 County Road 513, Pittstown, NJ 08867
Mane Stream (Formerly Somerset Hills Handicapped Riding Center) ManeStreamInc.org
Therapeutic Riding at Centenary
400 Jefferson St Hackettstown, NJ 07840
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NJ Division of Disability Services 1-888-285-3036
NJ’s information and referral phone service for disability related information.
Catastrophic Illness in Children Relief Fund 1-800-335-3863
New Jersey Traumatic Brain Injury Fund
Phone: 1-888-285-3036 (press 2)
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Disability Rights NJ (formerly NJ Protection and Advocacy) www.drnj.org
(609) 292-9742 or (800) 922-7233 in NJ Only (609) 633-7106 (TTY)
Disability Rights New Jersey (DRNJ) is the consumer-directed, non-profit organization that serves as New Jersey's designated protection and advocacy system for people with disabilities in the state. In partnership with individuals with disabilities and their families, DRNJ works to protect and advance the rights of people with disabilities. DRNJ provides information and referral and a broad range of advocacy services, including legal representation in numerous cases in state and federal courts.
Back In Action
Welcome to Back In Action, a “classified ads” feature that connects people with available assistive technology (AT)! Back In Action is a project of the Assistive Technology Advocacy Center (ATAC), a program of DISABILITY RIGHTS NEW JERSEY (or DRNJ). DRNJ is a nonprofit corporation created under the laws of New Jersey.
Elizabeth M. Boggs Center on Developmental Disabilities
rwjms.umdnj.edu/boggscenter (732) 235-9300
The Elizabeth M. Boggs Center on Developmental Disabilities is New Jersey’s federally designated University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD). The Boggs Center is part of the University of Medicine and Dentistry of New Jersey (UMDNJ) – Robert Wood Johnson Medical School, Department of Pediatrics. Since its inception in 1983, The Center has emphasized a community based, life span approach to meeting the needs of individuals with developmental disabilities and their families.
The Arc of New Jersey
You may have visited the ARC web site before, but if you haven't been there recently or didn't notice it, they have a fairly new publication series, The Education Advocate. The Education Advocate is an excellent source of quality, up to date information. It offers incredibly relevant monthly newsletters and fact sheets that aren't so long and detailed that you get lost in them. Topics such as, 'Preparing for your child's IEP meeting', 'Extended School Year', and 'Education Advocacy: Record Keeping' and 'Common Mistakes in Developing an IEP.
Statewide Parent Advocacy Network (SPAN) www.spannj.org
The web site for the Statewide Parent Advocacy Network (SPAN) SPAN provides information and advocacy for kids with special needs. The website has a wide range of useful publications.
NJ Statewide Parent to Parent www.spannj.org/familywrap/parent2parent.htm
908-537-4673 Malia Corde
This is the site for the NJ Statewide Parent to Parent system. It also has links to other sites.
Family Support Center of NJ www.fscnj.org 1-800-372-6510
New Jersey Adoption Resource Clearing House (NJ ARCH)
Warm-line: 1-877-4ARCHNJ (1-877-427-2465)
NJ ARCH is a State-Funded service that provides support to all members of the adoption constellation.* Our goal is to direct people to appropriate adoption services in New Jersey. *The adoption constellation includes anyone whose life is touched by adoption, including those who receive and/or deliver services.
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Fetal Alcohol Syndrome
Be in the Know, State of New Jersey Fetal Alcohol Task Force website. Information/Resources for prevention, diagnosis and treatment of Fetal Alcohol Syndrome
POAC www.poac.net 732-785-1099
Advocacy and education. NJ’s leading provider of free autism training and education for parents, teachers, school bus drivers, emergency responders, etc.. All presentations and events open to any family/child that has a disability (not just an autism spectrum disorder).
Asperger Syndrome Education Network www.aspennj.org Phone: (732) 321-0880
Autism NJ, formerly COSAC www.autismnj.org
1-800-4-AUTISM Web site for The New Jersey Center for Outreach & Services for the Autism Community. Facilitated support groups, education, advocacy, publications and more.
Organization for Autism Research (OAR) www.researchautism.org
Great publications for parents and professionals. Life Journey through Autism Series, includes:
A Parent’s Guide to Assessment, A Parent’s Guide to Research and A Guide for Transition to Adulthood
Autism Speaks www.autismspeaks.org Dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention and treatments for autism.
Autism Society of America www.auitsm-society.org
The primary mission of ASAF is to raise and allocate funds to address the many unanswered questions about autism.
Down Syndrome Association of Central New Jersey www.dsacnj.org
180 Ewingville Road, Ewing, NJ 08638
866-369-6796 or 609-406-9258
Bucks County Downs Syndrome Interest Group www.bcdsig.org
Kintnersville, PA, 18930
215-766-0890 Email: email@example.com
Down Syndrome Group of Northwest New Jersey www.dsgnwnj.org
P.O. Box 212, Washington, NJ 07882
National Down Syndrome Congress’ New Parent Package
New Parent Package; a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges – and joys – of raising a child with Down syndrome. You will also find a wide array of current, expert articles, recommended reading and answers to the most frequently asked questions regarding Down syndrome. If you need further information, please contact the NDSC Center by calling, toll-free, 1-800-232-NDSC or emailing us at info@NDSCcenter.org.
National Down Syndrome Society www.ndss.org/
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New Jersey Early Intervention Services www.njeis.org
This Web site was created by the regional early intervention collaboratives in New Jersey. There is basic information on each collaborative, and the Transition Handbook is available here.
National Early Childhood Technical Assistance Center www.nectac.org
919-962-2001 NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP). NECTAC serves all 50 states and 10 jurisdictions with an array of services and supports to improve service systems and outcomes for infants, toddlers, and preschool aged children with special needs and their families. Each state's Part C and Section 619 Program Coordinators have a contact person at NECTAC and request TA on behalf of their state programs. Funded since 2001, NECTAC and its predecessor TA projects have a foundation of over thirty-five years of technical assistance excellence in early childhood services. Our mission: To strengthen service systems to ensure that children with disabilities (birth through 5 years) and their families receive and benefit from high quality, culturally appropriate and family-centered supports and services.
Zero to Three www.zerotothree.org Information about infant development in the first three years.
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New Jersey Prescription Drug Price Registry www.njdrugprices.nj.gov
1-800-242-5846 (toll-free in NJ)
This drug list with prices will be updated weekly. The prices displayed for each drug are from the most recent claims submitted by licensed New Jersey pharmacies to the New Jersey Division of Medical Assistance and Health Services as their "usual and customary" prices. The usual and customary prices of a drug should be comparable to the cash price the retail customer will be charged by the pharmacy. For a number of reasons, the prices actually charged by your pharmacy may not be the same price that appears on the Registry. The prices of prescription drugs may vary from day to day. Also, the unit price on the Registry is based upon the quantity purchased in the last reported claim. The prices contained in this registry are meant to help you compare prices at different pharmacies and are not a guaranteed price. Always call or visit your pharmacy to find out the price before buying your medication.
Hunterdon County Medication Access Partnership Help finding coverage for prescription medication
or www.rx4nj.org RX 4NJ, a Web site designed to help low-income, uninsured New Jersey residents get access to patient assistance programs.
NJ FamilyCare Advantage 1-800-637-2997
http://www.horizonnjhealth.com/members_nj_familycare_advantage.asp Are your children without health insurance? They don't need to be! The NJ FamilyCare Advantage program offered through Horizon NJ Health can help. This program provides a wide range of benefits including: Doctor visits and regular check-ups, Immunizations, Dental care (up to the age of 12), Prescriptions, Hospitalization, And much more! Members enrolled in the NJ FamilyCare Advantage program are required to pay a monthly premium and certain benefits require a copayment to the servicing provider. The premium is based on the number of enrolled children in the family.
One child is $137 per month Two children are $274 per month Three or more children are $411 per month
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The National Association for the Dually Diagnosed www.thenadd.org
(845)331-4336 (800)331-5362 (845)331-4569 (fax) firstname.lastname@example.org
An association for persons with developmental disabilities and mental health needs.
NADD is the leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care.
New Jersey Department of Children and Families Behavioral Health Services
1-877-652-7624, 24 hour hotline
Mobilization and Emergency Response, Youth Case Management Services. See below for Care Management Organization & Family Support Organization
Mobile Response 24 Hour Crisis Hotline 1-877-652-7624
Tri County Care Management Organization for Hunterdon, Somerset and Warren
Family Support Organization for Hunterdon, Somerset and Warren
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Maternal and Child Health Library Children and Adolescents with Special Health Care Needs
The most comprehensive listing of information regarding children with special needs that I’ve ever seen. Includes databases, hotlines, electronic publications and web site listings and links specifically regarding children and adolescents with special health care needs. Includes everything from Adolescent Transition, Financing Services, Home Modifications and Health Insurance to Hospice and Palliative Care to Community Interactions.
National Dissemination Center for Children with Disabilities
NICHCY is very pleased to offer you a wealth of information on disabilities! NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on:
disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
Centers for Disease Control and Prevention, Your Online Source for Credible Health Information
U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA)
Data, research and information on Children and Youth with Special Health Care Needs
National Institutes of Health, The Nation’s Medical Research Agency
Social Security Administration 1-800-772-1213
Benefits for Children with Disabilities www.ssa.gov/pubs/10026.html
National Institute of Neurologic Disorders and Stroke
Education Resources Information Center (ERIC) www.eric.ed.gov
The ERIC mission is to provide a comprehensive, easy-to-use, searchable, Internet-based bibliographic and full-text database of education research and information.
Family Voices http://www.familyvoices.org/
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Sibling Support Project www.siblingsupport.org
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
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Hunterdon County Surrogate http://www.co.hunterdon.nj.us/depts/surrog/message.htm
908-788-1156 Surrogate: Ms. Susan J. Hoffman email@example.com
Deputy Surrogate: Mr. David S. Douglas Office Hours: Monday - Friday 7:45 AM to 5:15 PM
Guardianship Association of New Jersey (GANJI ) www.ganji.org
GANJI is a not-for-profit organization of professionals, families, and individuals committed to supporting guardians and other surrogate decision makers in enhancing the lives of persons who require assistance. P.O. Box 546
Chester, New Jersey 07930 1-877-GUARDNJ Email: firstname.lastname@example.org
New Jersey Department of Human Services Division of Developmental Disabilities
Bureau of Guardianship http://www.state.nj.us/humanservices/ddd/services/guardianship/
Web site includes: Bureau of Guardianship Frequently Asked Questions, Fact Sheets including Role of Guardian and Family Guide to Court Process.
Division of Vocational Rehabilitation Services www.wnjpin.state.nj.us
908-704-3030 or 877-872-5627
NJ Housing Resource Center www.njhousing.gov
Association on Higher Education and Disability http://www.ahead.org/
The HEATH Resource Center http://www.heath.gwu.edu/
The HEATH Resource Center provides online, web based resources on postsecondary education for individuals with disabilities.
The Organization for Autism Research (OAR) http://www.researchautism.org
Uses applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
Great booklets (many also published in Spanish) that can be downloaded, these are a few: A Parent’s Guide to Research, A Parent’s Guide to Assessment, A Guide to Transition for Adulthood, A Teacher’s Guide to Autism
Kids as Self Advocates (KASA) http://www.fvkasa.org
Kids As Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth. We are teens and young adults with disabilities speaking out. KASA knows youth can make choices and advocate for themselves if they have the information and support they need.
Association For Driver Rehabilitation Specialists (ADED)
ADED, a nonprofit association, is the primary professional organization in the field of driver education/driver training and transportation equipment modifications for persons with disabilities through education and information dissemination
8 sites listed in NJ
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The Child Development Center
190 Route 31
Flemington, NJ 08822
Phone: (908) 788-6396
Fax: (908) 788-6581
SCHS Case Manager
Developmental Pediatric Associates